Language  and social identity, healing through connection with animals, and a painting in progress

This week I was planning to post my current painting and write a bit about the painting process, but the art project is still in progress, and so, I thought I’d share some of the various things I’ve been looking at and listening to that might also interest people visiting this site.

1) A link: https://www.rickhanson.net/being-well-podcast-how-language-shapes-your-identity-with-dr-katherine-kinzler/ to an episode on the Wellbeing podcast with Forrest Hanson and Dr Katherine Kinzler about how language shapes our social identity and how we view other people. The key topics discussed are: the reasons that language is such an important signifier of identity and why the brain cares about categories; brain plasticity and early language acquisition; positive influence of bilingual exposure; language bias and dialectical prejudice and their consequences; what can be done to limit linguistic prejudice in diverse contexts and the need to talk to children about language. The podcast was of special interest to me since I acquired English, as a second language, at an early age, and also brought up my son bilingual, which gave me the chance to observe and experience a lot of what is discussed on the podcast first hand. Also, the podcast took me back in time to Henri Tajfel’s work, social psychology courses and exams.

Summarily, they discussed how the groups we belong to become an important part of our self concept. As they mentioned, we all tend to automatically divide the world into people like me and not like me. From an evolutionary perspective this fast prejudicial sorting helped our ancestors survive thousands of years ago, but it can lead to many cognitive biases, stereotyping, prejudice and other errors. Henri Tajfel proved that even minimal and insignificant differences were enough to make people display in group biases. He claimed that ‘….. when skin color, or height, or some facial traits of social ‘value’ are concerned, there will be marked sharpening of differences in the degree of these characteristics perceived as belonging to individuals who are assigned to different categories(1957)…. and that ‘if a group of individuals is perceived as different from the non-group of individuals, the perceived differences between those within the group and those outside the group will automatically be sharpened, and the differences perceived between the members of the group (i.e., intragroup differences), and between those outside the group will be lessened’. He also, cautioned against explaining phenomena like discrimination, racism or oppression at a psychological level alone. He wrote: ‘No psychologist who has a sense of proportion about the possibilities and the limitations of his discipline would claim that prejudice can be ‘explained’ and dealt with on the psychological level alone. This is an infinitely complex problem, and in its handling we need the cooperation of legislators, social workers, economists, historians, sociologists, psychologists and many others’ (1963). This could be relevant to the fundamental attribution error (FAE), mentioned on the podcast, which basically, refers to how we tend to over-estimate personality-based explanations for human behaviours and underestimate contexts and environmental influences.

On this podcast Dr Kinzler presents studies that have shown that we definitely also display biases in relation to languages and accents even from early childhood. Research demonstrates preferences for native-language speakers at a young age. Children do not only automatically categorize, but also internalise stereotypes, preferences and beliefs in their social contexts. One explanation inside an evolutionary psychology framework is that children preferentially evaluate others along dimensions that distinguished social groups in prehistoric human societies. She also discusses the benefits of bilingualism and the ease that young children pick up languages, and also how bilingual exposure could decrease linguistic prejudice. Dr Kinzler talks about the benefits to being raised in a multilingual environment and the fact that early exposure to multiple languages can enhance children’s communication skills, even when they are monolingual. She speculates that this might be because it enhances perspective taking, our ability to see things from someone else’s point of view.

More themes are touched upon on the podcast like homophily, the tendency in people to associate and bond with others they view “like them” and the theory of group behavior that seeks to understand how hierarchies of power are created and perpetuated within societal groups, where often one social group holds disproportionate power and enjoys special privileges over another and influences who gets access to what kinds of social resources. Unfortunately, injustices and oppression are then normalized through justifying them as being moral or handed down to us by God. They also make reference to Nicholas Christakis (I have devoted a previous post on one of his books), who found that even though your friends are not your relatives, they are likely to be as genetically similar to you as if they were your distant cousins. They discuss code switching, which is when someone moves from using different languages or dialects in different circumstances. For example, one might reverse to using the local dialect when returning back to their village.

2) An extract from Bruce D. Perry’s (M.D. Ph.D) forward in the e-book: Transforming Trauma: Resilience & Healing Through Our Connections With Animals edited by Philip Tedeschi and Molly Anne Jenkins, which is a compilation of essays that focuses on the capacity of human-animal interactions to play a central role in the therapeutic approach to trauma.

“……In studies of the effectiveness of therapy, one common (and most powerful) factor emerges: the capacity to form a helping relationship is the best predictor of outcomes independent of clinical technique or therapeutic perspective. Reflect a moment on the intense emotional connections between humans and animals—you may have one yourself.….. It stands to reason then, that the human-animal connection could be used for therapeutic purposes…… Another emerging, important factor in therapeutic work in trauma is the importance of regulation as a key factor in effective engagement. A dysregulated child (or adult) is difficult to connect with and impossible to reason with. And, of course, a sensitized, overly reactive stress response is a major characteristic of most trauma-related syndromes. This sensitization frequently interferes with the capacity to utilize any cognitive dominant interventions. The organization of the central nervous system (CNS) is such that all sensory input (read as “all experience”—including therapeutic engagement) first is processed and, if appropriate, acted on by lower, more reactive networks in the brainstem and diencephalon before limbic and cortical networks have a chance to process or act. This means a clinician attempting to engage a dysregulated individual with these lower neural networks on hyperdrive will be fundamentally frustrated. The sequence of engagement dictated by our neuroanatomy is to regulate first, then relate, and then reason. Our capacity to get to the most important and most “human” part of our brain depends upon a minimal level of regulation. Enter man’s co-evolutionary partners, the dog and horse. In the codependent evolution of humankind and animals, dogs, specifically, were major regulators for humans. For possibly 32,000 years, humans and dogs have depended upon each other. When a known dog is present and projecting nonverbal, nurturing signals, part of the human brain knows “the camp is safe.” Dogs, with their superior capabilities in hearing and smell, expanded the sensory alarm radius for their human clan dramatically. Deep in our brain we know that if the dog is relaxed and playfully engaged, we are safe. The mere presence of a calm dog will calm us down. In contrast, a shift in vigilance or an alarm bark tells us something is afoot. Similar shifts in a horse’s behavior can have comparable impact on our regulatory state. The horse has been our co-evolutionary partner for less time than dogs, probably 8,000 years or so, but this capacity to read and respond to the subtle emotional cues of a human in ways that are regulating and reassuring is equally strong. Certainly, this co-regulatory capacity is a major component of therapeutic work with animals. A second and equally important regulating element of interacting with our animal partners is the impact that repetitive, rhythmic somatosensory….. Petting, grooming, riding, and walking with our animals will provide a powerful regulating rhythmic input that is known to calm a dysregulated individual. The combination, then, of human-animal connectedness to regulate and relationally engage (relate) provides a perfect matrix for the therapeutic process with an individual experiencing trauma. This is most helpful if the trauma has been in the context of early life relationships resulting in attachment problems; in these cases, the individual has developed human-specific relational evocative cues that can disrupt attempts to use traditional therapies that are relationally mediated. The client will be escalated and dysregulated by attempts to “connect.” In these situations, the animal-specific sensory cues that are present during the regulating and relationship-building processes are not “evocative” and disruptive. The client can engage, learn, grow, and heal in context of the human-animal relationship, preparing them for healthier human connectedness in the future…..”

3) Finally, I am also providing links to a Greek TV series, Πλάνα με Ουρά, in which we get to see how animals, especially, horses and dogs, can play a role in healing trauma and supporting physical conditions, as well as, facilitating self awareness.

a) In episode 10 at: https://www.ertflix.gr/ellinika-docs/plana-me-oyra-ep10/ there’s a part (37 min. onwards) about «Ιππόλυση», a center that rescues horses, which then help people through learning, healing and self-awareness sessions (ένα κέντρο που σώζει άλογα, τα οποία στη συνέχεια βοηθούν τους ανθρώπους μέσα από συνεδρίες μάθησης, θεραπείας και αυτογνωσίας).

b) In episode 12 at:https://www.ertflix.gr/ellinika-docs/plana-me-oyra-ep12/, there’s also a part (18 min. onwards) about the Therapeutic Equestrian Center of Serres, where children and adults with cerebral palsy, multiple sclerosis, severe neurological diseases, or mental retardation work with horses and staff (Στο Κέντρο Θεραπευτικής Ιππασίας Σερρών, παιδιά και ενήλικες με εγκεφαλική παράλυση, σκλήρυνση κατά πλάκας, σοβαρές νευρολογικές παθήσεις, αυτισμό ή νοητική υστέρηση συμμετέχουν σε συνεδρίες με ειδικούς και άλογα).

Soma  / Σώμα   (continued…)

Somatic awareness

“The new neural pathways established by Somatic Awareness eventually replace the trauma-related pathways. Somatic Awareness changes the brain” Susan McConnell

This post is thematically linked to the previous one, in the sense that it also refers to the body, which is not separate from the mind, since the mind arises from our brain processes, though our mind processes are not just the manifestation of our brain activity, but also a relational process, Both our mind processes and our physiology are also the product of our relationships and broader cultural and natural environment. Brain, body, mind, and environment only exist in relation to one another; that is, they are intrinsically related (Northoff, 2003). In a National Geographic article I was recently reading Simon Worrall writes: “The problem with having a dualistic view of the brain and its relationship to the physical body, and the physical world, is that it makes us see ourselves as unnaturally self-contained, both as minds and as autonomous agents. In other words, we view ourselves as things that operate from within, so we’re less sensitive to things that influence us on the outside.”

In today’s post I will continue the focus on the body through presenting extracts from Susan McConnell’s book: Somatic Internal Family Systems Therapy, which looks at Internal Family Systems Therapy (IFS) from an intensely somatic perspective and discusses how trauma and our lived experience are reflected in our physiology and levels of health. In this post I have focused on the parts of the book that discuss the impact of trauma on our ‘bodymind’ and ways to foster somatic awareness in order to heal and not on IFS, initially developed by Richard Schwartz; however, I have written about IFS in previous posts.

One of the many people who have influenced her work was Thomas Hanna, who studied neurology and developed the idea that all life experiences lead to physical patterns in the body. He coined the term “somatics” from the ancient Greek word soma, meaning body. McConnell writes: “Much of my learning and experimenting was convincing me that it is possible to overturn the mechanistic view of the body that has prevailed in Western cultures since the Enlightenment, that we could shed the objectification of our body as the Latin corpus and embrace this soma, this more subjective view of our body. We could view our body from the “inside out.” McConnell mentions that it became clear to her how societal forces and cultural structures have truncated our capacity for true embodiment, such as religious institutions that devalue the body, and schools that require little children to sit for hours at a time, and our consumerist and media-driven culture that distracts us from our body awareness..

She describes how she understood that psychotherapy is physiology and her own journey to more physical awareness and healing:

I was caught in a passive, objectifying relationship with my body. My body could not be treated as if it were a car that could be taken in for maintenance and repair from overwork and neglect….. I began to understand how my perceptions, behaviors, and beliefs were shaping my body structure and function. Like the [domestic violence] shelter residents my physical and emotional scars were inseparable. Embracing them led to healing in both my mind and body. I came to understand that I am my body rather than I have a body.”

Our less than optimal experiences and more severe traumas of all kinds when not processed leave their residual energy and live in our bodies. Trauma and chronic stressors activate the endocrine and nervous systems toward “fight or flight”, which practically means an increase in heart and breath rates, a release of stress hormones or autonomic nervous system responses like dissociation. McConnell claims that the parts of us that carry traumas and our adaptations to trauma affect our biological systems and use genetic predispositions or organ weaknesses. She writes: “they know how to build effective walls to keep out and to imprison. They can turn the body into a fortress by blocking or buttressing energies at the joints, in the diaphragms, in the lower back. They get hold of our internal pharmaceuticals. They send hormones to affect heart and breath rates.” McConnell writes that because residues that were released from the sympathetic activation of the autonomic nervous system during trauma are held in the body the act of bringing awareness to these physical symptoms begins the process of a physiological retrieval. Our sensations reveal emotions, images, words, stories. Staying with our physical sensations and following where they led us revealed the stories behind the verbal words the “body stories”. Awareness of the body builds new neural pathways between the prefrontal cortex and the limbic brain. Bessel van der Kolk claims that “Physical self-awareness is the first step in releasing the tyranny of the past” (cited in McConnell).

Another reason why it is important to work with the body is that often our wounds from relational traumas may have occurred from conception through the first four or five years of life, for instance, which is before we had the capacity to consciously remember or had the words to tell our stories. In this case the stories of our pain or disruption will be told through the body’s sensations and movements or disruptions in sensation and movement. Mc Connell writes:

“Early attachment wounds and later traumatic wounds make a potentially indelible physiological imprint. The physiological signs leave a breadcrumb trail to where the parts are captive, leading us to a physiological retrieval. With trauma in general…..  the nervous system emits a biochemical blast to try to help the person escape or get help. When their actions are unsuccessful, the nervous system goes into shutdown. Endorphins are released. Muscles collapse and become still. Blood pressure and heart rate drop. Sensory organs become numb. Memory access and storage are impaired…….. the verbal story and even images may be cut off. All that remains of the story are disturbing, intrusive physical symptoms and disruptions in their relationships. Trauma often results in fragmentation of the various aspects of our parts and will inhabit various aspects of the brain, body, and psyche. The painful event may be stored in the reptilian brain, whose language is sensation and movement. The somatic aspect of a part may be cut off from the feelings, thoughts, and images of the event. Sometimes the images and thoughts have been deeply suppressed and only fragments of the body story are available.”

So, it becomes apparent that recovery and healing or restoration of health requires awareness to begin with. McConnell quotes Dan Siegel, who cites research that indicates that strengthening our capacity for awareness improves the health of our mind, body, and relationships, including improving immunity and cardiovascular functions and enhancing epigenetic regulation.  Awareness is central in any healing process. In the book somatic awareness involves a number of things. According to McConnell Somatic Awareness involves a focused, open attention to one’s bodily experience as it unfolds moment by moment. She writes that when we practice Somatic Awareness, we go inside to notice what is happening in the depths and interiors of our body…. we notice how we awaken the proprioceptive sensory nerves in our fascia that provide us with information.  In relation to the fascia she writes:

The fascial system is the largest system in the body and is the only system that touches every other system, interpenetrating and surrounding them all, enabling them to function in an integrated manner.  Our fascia is central to our awareness of our body in space and our awareness of all that is happening inside our body. This connective tissue literally encircles and encases our whole body, connecting, stabilizing, supporting, and protecting the cells, bones, muscles, organs, brain, nerves, arteries, and veins and the entire body as a unit. The fascial system looks like a spider’s web or a densely woven sweater and provides shape, form, and cohesion to the body. It is present just under the skin and in the body’s deepest layers….. The fascia can be considered to be one of our richest sensory organs. It has more sensory nerve endings than our skin. Together with the bones, the fascia facilitates our balance and alignment— our dynamic relationship with gravity, our connection to the earth. The sensory nerve endings embedded within the fascia contribute to both interoception (how we feel inside ourselves) and proprioception (our awareness of our body in space). So when we “go inside” to find out what is happening in our body, it is the interoceptive capacity of the sensory nerves in our fascia that tells us that our stomach is tight, or our jaw or our toes are clenched, or our back is aching. We use proprioception when we notice our posture, balance, and movement relative to gravity. We tune in to our fascia both to listen to our body story and to understand our relationship to our body with our external environment. It links our inside with the outside.”

There are different kinds of awareness interoception and proprioception (mentioned above) exteroception, and neuroception, and Somatic Awareness involves all of them.

In the book interoception is described as the awareness of our subjective physical experience. Dan Siegel tells us that studies suggest that people who have more interoceptive abilities “have more capacity for insight and empathy, as well as, emotional balance and intuition.(cited in McConnell). McConnell writes: “We use our interoceptive awareness to attune to the various sensations and movement impulses in our body. Sensory nerve endings receive signals from our gut, heart, and other internal organs and body tissues that influence the feelings, moods, and thoughts of our parts and are the basis of our subjective sense of ourselves. Many affective neuroscientists have related interoceptive awareness with emotional and cognitive processes and see interoception as a key element in our understanding of the bodymind….”

On the other hand, exteroception is our sensitivity to and our perception of our outer environment. Mc Connell writes: “We use our senses of seeing, hearing, touching, smelling, and tasting to get information about the world around us. We receive sensory data through our sense organs and interpret those sensory impressions. We give meaning to this data, which informs our behaviors and attitudes toward ourselves, others, and the world…..”

Proprioception is another kind of awareness of our internal system and this awareness of our muscles, our movements, and our behaviors can allow the memories in the body’s tissues to release. McConnell writes:

“It uses sensory receptors located in the skin, muscles, and joints that allow us to touch our nose with our eyes closed and walk without looking at our feet. It involves our balance, agility, and coordination. It involves the relationship of our body parts to each other and to the external world. Our proprioceptors give us a sense of our position in space, how we move through the world. They allow us to control the force or effort we move with. We sense tension in our body and the force and direction of that muscular tension. Proprioceptors function largely below our conscious awareness. They can be affected by many factors such as illness, trauma, and aging.”

McConnell also refers to neuroception as another aspect of somatic awareness.  It is a term coined by Stephen Porges and it refers to the ability to perceive neurological safety in the external environment, as well as, to listen inside the body and between people’s nervous systems. According to Stephen Porges’ polyvagal theory it concerns the action of the autonomic nervous systems to distinguish whether situations or people are safe or dangerous.

Finally, not all illness or suffering are the direct or indirect result of trauma and other life stressors; however, health care systems and structures that embrace complexity, are more holistic and humane, and are also trauma informed, seems to be the more contemporary, rational, democratic and respectful approach to adopt. Environmental, physical, emotional and mental factors should all be taken into account, as much as possible, and to the extent that resources allow this.

Our soma (σώμα) in the world

“I have come to think of all the metal in my body as artificial stars, glistening beneath the skin, a constellation of old and new metal. A map, a tracing of connections and a guide to looking at things from different angles” Sinead Gleeson

“… Assume there is goodness all around / unless there is not  / and even then, be the goodness” By Sinead Gleeson for her daughter

In today’s post I’ll be writing about Constellations: Reflections From Life, Sinéad Gleeson\s memoir.  It is a story about a life in a body as it goes through sickness and multiple surgeries, loss, health, motherhood and creativity. The book is comprised of powerful and sometimes raw essays that delve into illness, disability, love, grief, the politics of the body, health and religion, oppression, art and music. It is a reflection on womanhood in Ireland and the importance of artistic expression. Some themes were eerily familiar. During my own journey I have written about similar themes as I have attempted to record and create new meaning of my own life journey, and the more memoirs / essays  one reads, particularly those written by women, the more one notices  a pattern of recurring  pains, themes and references. Below I have tried to provide glimpses into Gleeson’s reflections, chapter by chapter and theme and by theme.

In the first chapter Blue Hills and Chalk Bones Gleeson begins by noting that we rarely stop to think about our bodies. I think to some extent many of us take our bodies for granted, living in our heads most of the time, forgetting to appreciate our body and its miraculously complex functions. We tend to pass our bodies in silence until something goes wrong.

Gleeson writes: “The body is an afterthought. We don’t stop to think of how the heart beats its steady rhythm; or watch our metatarsals fan out with every step. Unless it’s involved in pleasure or pain, we pay this moving mass of vessel, blood and bone no mind. The lungs inflate, muscles contract, and there is no reason to assume they won’t keep on doing so. Until one day, something changes: a corporeal blip. The body – its presence, its weight – is both an unignorable entity and routinely taken for granted. I started paying particular attention to mine in the months after turning thirteen. When a pain, persistent and new, began to slow me down. My body was sending panicked signals, but I could not figure out what they meant. The synovial fluid in my left hip began to evaporate like rain. The bones ground together, literally turning to dust…… Hospital stays became frequent, and I missed the first three months of school four years in a row.”

Gleeson takes us back to her early life. She weaves in the cultural and we get glimpses of the sociopolitical and religious reality of Ireland, which might not be that dissimilar to our own experience. Memoirs have the potential through the personal story not only to reveal the local sociopolitical, but also, the universal.

She writes: “… there is a story in Genesis of Jacob wrestling with a stranger, thought to be an angel. When the angel couldn’t defeat him, he touched Jacob’s hip, dislocating it, leaving him with a limp for life. …. I was a pious child. Weekly Mass, regular trips to confession, and above all a fervent and deeply held belief in God, heaven and all the saints. This was reinforced by heavy indoctrination at school……And elsewhere, she says:  “Doctors replaced clergy as healers, but medicine and religion remain heavily intertwined in Ireland.”

This memoir is the story of a woman’s body as it fails her, as it recuperates, as it gives her joy, and as it births new life. Through the stories of the body we learn about its broader container and we glimpse at the bigger picture. She reflects on the shame, the sense of difference and alienation, the feelings of less than and of disempowerment, of the power imbalances in medical contexts and of kindness.

“What I felt more than anything in those years was overwhelming embarrassment. Ashamed of my bones and my scars and the clunking way I walked. I wanted to make myself smaller, to minimise the space I took up. I read that shrews and weasels can shrink their own bones to survive.”

“My grandmother used to work at another local pool, and convinced her old colleagues to let me swim there when it was closed. Alone, with the underwater lights, its tiled bowl felt eerie. All that blue, and quiet, the water shadows on the ceiling. I scared myself by imagining what lay beneath. Each week, I swam faster and got stronger. My body became an inverse: strong arms, while the weak left leg refused to move or build muscle. It withered, and is still thinner than the right. My lack of symmetry endures.”

“Paddy the bus driver told me I never look him in the eye when I speak as he lifted the wheelchair from the bus. I refused to get into it. Missing the first three months of term in a new school had left me in a hinterland. Fast friendships had already formed, and although I was trying to catch up, I was separate; an island away from my classmates. Now, eight or nine of them, boys and girls, stood silently regarding the chair, while I sank into my own stubbornness. …. The boys grabbed the chair and began to whizz up and down the road outside the hotel. They pulled wheelies, spun each other around, and it had a domino effect: everyone wanted a go. Our sense of others is frequently wrong. We second guess, and make assumptions. The chair became a comic prop, without making me the butt of the joke. There in the French sunlight, we laughed, and I loved them for their kindness.”

“The doctor– patient relationship had its own imbalances. I have never forgotten the sense of powerlessness in the face of instruction: lie down, bend forward, walk for me. I have felt it when counting backwards from ten under the stark lights of an operating theatre. Or when skin is sliced cleanly through. You are in someone else’s hands. Steady, competent hands, hopefully – but the patient is never in charge. The kingdom of the sick is not a democracy. And every orthopaedic doctor who examined me during those years was male…… Our hospital body, all rivers of scars; the day-to-day form that we present to the world; the sacrosanct one we show to lovers – we create our own matryoshka bodies, and try to keep one that is just for us. But which one do we keep – the biggest or smallest?”

“The cast covered two thirds of my body, from chest bone to toe-tips, and required two people to turn me over. ……  It held fast for twenty years, until two pregnancies sixteen months apart were like a bomb going off in my bones….. After ten weeks encased in my hip spica (I’m my own alabaster statue) a doctor attempts to remove it with a cast saw. Blade meets skin and I try not to imagine what’s happening beneath the plaster. The pain feels like a scald, of heat spreading. I explain this to the orthopaedic doctor – this man I’ve never met – and he does that thing I’m used to male doctors doing: he tells me I’m overreacting. A rotating blade is slicing into my flesh, but I need to calm down. The room fills up with screaming. Me, as ventriloquist throwing pain across the room. When my mother starts to cry, he demands that she leave the room. The blade cuts and cuts, with its own rhythm, and this man urges it on, like a horse in a race. Fifteen minutes later, I plead with him to stop and he finally gives up, visibly annoyed. In an operating theatre the next day, the plaster is cut away like a sculptor’s mould. Under the cast, there is old skin and new scars now: open, jagged lacerations, running down each leg like the broken line of a border. Around them, my limbs look tanned, but this is just weeks of dead skin layers. The leg swells that night and a nurse applies a compression bandage. Every time it’s removed, it pulls at the new scabs and the bleeding starts again.”

There’s a chapter with the title Hair. Gleeson writes:

”On a whim, months later, I tell my mother I want to cut off my hair. The hairdresser, my aunt, lives in a terraced house and cuts hair – only women’s, never men’s – in her kitchen. She is always immaculately made up, lip-glossed and kohl-eyed, with elaborate ash highlights. In less than an hour, mousy chunks are scattered on her lino. I regret it instantly, and for years beg my mother to let me grow it back. She refuses, saying that short hair is ‘easier to manage’…….  On a trip to a family wedding in Liverpool, a man mistakes me for a boy and calls me son. I cry for hours……”

“Each strand [of hair] contains everything that’s ever been in our bloodstream. Are memories there too, lurking between medulla and cuticle, embedded in each lock? Not dead, but ‘terminal’. Protein and protean.  Like blood, it’s difficult to tell male and female hair apart, but it is women who have been historically judged for their crinicultural choices…… there are other possibilities that come with the loss of hair. As a teenager, I learned that there was power in absence…..My first head-shaving was aged sixteen, but there have been many occasions since…….. The last time was in 2003. From motivation to method, I had little control over this particular haircut. This was the only time I removed the hair myself and the incentive was practical, not aesthetic. There was a diagnosis – a rare and aggressive type of leukaemia.”

“During chemotherapy, a patient ‘loses’ their hair….. It falls out, and many health insurance companies cover the cost of a wig. …. I have no recollection of this night. Or of other nights wearing it; of having long hair, or a simulacrum of it, falling down my back for the first time since childhood. I know that our brains selectively archive trauma, in illness or grief, but why was the wig censored?”

And there’s a chapter on blood, seen from different angles_ personal experiences that trigger visceral reactions in the reader and commentary and gratitude for the kindness of strangers: “Blood donation is that rare and uncomplicated incidence of a selfless good deed”

“The shedding of blood has historically been seen as a male act of heroism: from rite-of-passage fistfights, to contact sports and combat. Infrequent, random events seen as standalone milestones; stories to tell once the pain – and enough time – has passed. Female bleeding is more mundane, more frequent, more get-on-with-it, despite its existence being the reason that every single life begins.”

“A blood disorder is a whole body issue. Unanchored, migrant – blood is its own diaspora…..  Marshalled by the heart to locales of trauma, panic and arousal….. It circles unceasingly within us, even in sleep, or paralysis and comatose states.”

“In my late twenties, six months to the day since I married my husband, I found myself in an ambulance on a cold, glass-clear January morning, a paramedic holding me upright because it was too painful to sit, or lie on a stretcher. Later, in the hum and chaos of the hospital, I was told that something of concern lurked in my blood. I hadn’t suspected there was anything wrong until I found I could not bear any weight on my right leg. I guessed at a pulled muscle; and tried elevation and tight bandages. The throb and sear of it continued, and a doctor dispatched me to casualty, where I waited on a trolley in a tiny room beside two pensioners. That I was stationary for seventy-two hours now seems terrifying given that the eventual diagnosis was deep vein thrombosis (DVT). The blood in my calf vein had slowed and coagulated into a blocked knot…… The clot in my calf expanded and broke off, scaling my thigh like a rogue climber, making its way up to my lung…..”

“I’ve had blood transfusions for various surgeries, including the hip replacement. Having a previous lung clot meant taking a pass on full anaesthetic. During the five-hour surgery I was sedated, but mid-operation, I woke up. Not fully, but enough to know I was awake, and to wonder what was wrong with the spinal block, or if this was some sort of chemical trip, to feel a shove in the area where a surgeon was trying to insert my new joint….”

Poignant narratives on pregnancy, hospitals, trauma and love:

“This pregnancy starts to resemble drowning. My lungs are bad sails, refusing to fill with air. They slump, not billow. Doctors conclude that the problem might be heart damage, caused by the earlier chemotherapy, but after tests – more wires and screens and measurements – nothing conclusive is found. The only evidence of this pregnancy is the weekly photos of my growing stomach that my husband takes. The thriving bump at odds with my disintegrating hip.”

“I look at her face. The tiny pulse in her neck and the soft seams of her eyelids, shut tight against the world……. Her small belly can only handle minuscule volumes and although her intake is consistent, in her first days, she nearly chokes. Before we are allowed to go home, a nurse insists that all babies must demonstrate that they can eat a certain amount. I explain her incremental appetite, that she was born early and in ICU, as the nurse forces the silicone teat of a bottle into her mouth. The comma of her body uncurls, her skin darkens and she goes limp. The nurse whips her away, holds her upside down. With my daughter hanging bat-like, she thumps her back, shouting commands. I watch in horror, stuck to a chair. The sound of those slaps, her body turning purple, the feeling that after all we’ve both gone through for her to be here, she is slipping away. Sore, panicked, afraid to move, I am watching someone else’s life, not mine at all. It takes a minute – too many seconds – before she cries and I grab her back from the nurse….. And a fear, familiar as night, creeps in. That the implicit trust we put in the medical world has been misplaced. My hospital experiences have been good and bad, and childbirth is no different.…… The memory of her suspended by one leg has never left me. My skin chills even now. It is imperative to replace this image with something else. Thetis holding Achilles above the River Styx. Maybe this act, this first encounter with trauma, has made her immortal, inviolable.”

“The air conditioning goes unnoticed by me for weeks. Until it appears like tinnitus, and the rattle becomes an anti-earworm. Nurses and cleaners tell me they can’t hear it, but it thunders through every night. The tell-tale heart beneath the floorboards, the woman inside the yellow wallpaper….. Do you hear that? The haematologist addresses the student doctors ringed around my bed, a white-coated picket fence. A clot sounds like a creaky door, he says. When they leave, I listen for its hinges.”

“Hospitals are not unlike galleries. Interactive spaces; a large-scale installation of sound and colour, evoking emotion and working on the senses. The art on the walls here mixes modernity and old votives. State-funded canvases alongside Sacred Hearts and religious statues. On the longest corridor, the hospital’s spine, black paintings hang at clockwork intervals. Abstract, inked, their form and meaning unclear.”

“After her daughter spent time in an orthopaedic hospital in the 1940s, British artist Barbara Hepworth met the surgeon Norman Capener. Hepworth was better known as a sculptor, but Capener invited her to sketch and draw operations over a two-year period. In ink, chalk and pencil, Hepworth captured not the gore and invasiveness, but the work of fixing the body, of surgical intervention….”

The writer weaves in narratives about many artists, artists I was familiar with and others that I could potentially explore and get acquainted with, artists who transform their physical experience into art or become the art process and product themselves. Artists, who through the recording of their experience have attempted to retain some control and agency and to assert that their body belongs to them, resisting invisibility and objectification and becoming a mere statistic. Perhaps an artistic representation of our suffering is part of recovery and of asserting that we are more than our ailments. Gleeson also recalls the moment in hospital when the decision to write this book arose as a means of expression and continued existence.

“I gravitated towards writers and painters. People who told the stories of their illness; who transformed their damaged bodies into art…… My admiration of Kahlo has always been about the work; the transference of her life onto canvas, the self-reflection, the engagement with the taboos of illness and the female body…”

“I have no memory of this but my mother told me years later that I looked into her face and said, ‘I’m not going to die. I’m going to write a book.’ To commit to writing, or art, is to commit to living. A self-imposed deadline as a means of continued existence. It has taken me a long time to write that book and here I am, so very far from that awful night. Art is about interpreting our own experience. Upon entering hospitals, or haematology wards, our identity changes. We move from artist or parent or sibling to patient, one of the sick. We hand over the liquid in our veins to have it microscoped and pipetted. Beneš [Barton Beneš (1942– 2012)] used his art as tenancy. If hospital tubes could house his blood, so could his own work. Beneš knew that if his blood had to be anywhere other than in his veins, he might as well use it as an aesthetic agenda; a declaration of possession.”

“And it is all right. When there is a day that is pain free, or the sun shines, or my curious children ask about the lines on my skin. I explain my good luck, grateful that things were not worse. I am an accumulation of all of those sleepless nights and hospital days; of waiting for appointments and wishing I didn’t have to keep them; of the raw keel of boredom and self-consciousness illness is. Without those experiences, I would not be a person who picks up those shards and attempts to reshape them on the page. If I had been spared the complicated bones, I would be someone else entirely. Another self, a different map.”

The book like life is a tapestry of interwoven threads of pain, of endurance, of living, of gratitude, of love, and of art and creativity. In reading it one feels the writer’s resilience and courage, not only to have faced so much physical pain herself, but also, to have written a daring book. And one is also left with wonder and appreciation of our bodies, which we often pass in silence, semi-oblivious to their complexity and generosity even amidst pain, brokenness and suffering.